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bemery92
- 2021 -
- 2020 -

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Hej alla, jag heter Bethan. Jag bor i södra Wales i Storbritannien. Jag fick diagnosen HS 2016, efter ungefär tio månaders återkommande abscesser i ljumsken. Precis som de många människor som lever med detta tillstånd upplevde jag outhärdlig smärta och fysiskt obehag, men det svåraste för mig var de mentala striderna jag hade med mig själv. (Du kan läsa mer om min diagnos och hur jag hanterade den här) .

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I början av 2020 lovade jag mig själv att jag inte längre skulle låta min hud definiera mig. Sanningen att säga, jag var trött på att känna mig olycklig och saknade självförtroende. Jag ville göra 2020 till mitt år. (Lite visste jag då att världen skulle drabbas av en pandemi, men det är en helt annan historia) Trots utmaningarna i år har det hittills varit fantastiskt för mig. I början av mars fick jag bort en abscess kirurgiskt och sedan dess har min syn helt förändrats. Jag har hittat acceptans. Jag tittar inte längre i spegeln eller på mina ärr och föraktar det jag ser. Nu ser jag på dem som en del av mig och jag har lärt mig att älska alla dessa delar.

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Förutom det kirurgiska avlägsnandet har jag också haft några personliga segrar i år. Jag bestämde mig för att dela med mig av min berättelse som publicerades av British Skin Foundation. Jag hittade en kärlek till träning och på grund av begränsningar i låsning, har jag arbetat hemifrån hjälpt mig att återuppliva min kärlek till att vara utomhus. (Jag är nästan alltid uppe på ett berg i dag ha).

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Ett av de bästa resultaten i år (hittills) är att skapa så många otroliga förbindelser under HS Awareness week. Det har varit fantastiskt att lära känna människor från hela världen, höra deras historier och hjälpa till att stödja varandra. Detta inkluderar det underbara teamet bakom HS Connect. Om det inte var för HS hade jag inte träffat Brindley och Denise, så när jag tänker på det så kan jag inte låta bli att vara tacksam mot min hud (jag trodde aldrig att jag skulle säga det 2016) en sak som alla dessa anslutningar och nya relationer har gemensamt, åtminstone för mig, är önskan att stödja andra, dela berättelser och om möjligt försöka lyfta människor. En positiv syn har varit avgörande för mig och jag känner att jag brinner för att dela den positiviteten med andra.

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Missförstå mig inte nu, jag har fortfarande nere dagar (det gör vi alla) men jag skulle vilja tro att det finns sätt att hjälpa varandra att komma igenom de tuffa tiderna. Så här är jag. Varje månad kommer jag att uppdatera dig om de små saker som verkligen hjälper mig att njuta av livet, de små saker som får mig att inse att vi är mycket mer än bara hud.

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Det här är lite av mig.

Hidradenitis Suppurativa:

Ett tillstånd som så lätt kunde konsumera mitt liv, jag väljer bara att inte låta det